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Today was a crazy day..I had a follow up regular doctor appointment so I could get a follow up on my burn and I could get all my prescriptions on file and a letter from the doctor saying that I needed to have all medications and insulin and needles on plane in case pump malfunctioned etc. I also had to beg for some refills of meds that are not good for me and assured the doctor that once at the Mayo Clinic the goal was to give up unnecessary meds and get a correct diagnoses with proper testing ect. So I got enough refills to get through the next 10 days. I am so excited about this change in my life because with everyone's help and support I dont want to let anyone down. I want to be healthy. I want to eat right. I want to avoid putting poisen into my body. If the doctor says no wine..then no wine. If the doctor says wine on holiday is all you get then that is all I get. I will do anything. I just feel so privledged to be on this journey of health. I know I was on a road to darkness and death. I saw it and then I had an intervention from a very dear friend, and I did a 180. Was it hard? It was the hardest thing I have ever done. Now my question is not should I eat the cream puff or not, but the question is "is this good for Becca? Will it help me in anyway?" That is a basic question..a yes or no question. If I have to justify it, then it is a wrong choice. And for every 2 steps forward, I seem to take one step back. That is why I am journaling this journey. I want people to know that you don't have to be perfect when you are sick, you don't have to have it all together to ask God to send you help from above, you don't need to do it all yourself. God's grace and mercy flows...it is the living water. On bad days..those days when I overdid the day before, so it is my own fault that I can't get up and walk around, or get on the floor and play with my son, I just ask God to redirect my foot steps. To lead me in the way and let me hear the still small voice that says 'Stop" today. You have done enough....rest in Me and I will renew your strength..."
I have been reading the airline guidelines very carefully. There are so many rules and that is just for regular travelers. I have medications, an insulin pump, and insulin and pen needles. I am not really looking forward to the airport waits and security. I know I am a red flag to them. I am wearing sweats, a t-shirt, and jacket so I can be scanned and comfy. Easy on shoes too. Tomorrow the final Christmas decorations go to the storage unit, and Benny and I are going through his toys...Feel free to write me, post comments etc. I would love to hear from you.
Thanks for your cotinued prayers,
love, becca
Wednesday, December 30, 2009
Saturday, December 26, 2009
The Countdown Has Begun- Dec. 26th..
Hi Friends,
Wow, can't believe I leave in 6 days for Scottsdale, AZ. The final countdown has begun for me and it couldn't be at a better time. In the last week, I have been sick twice with terrible stomach pains and all kinds of sickness. After talking to my family today, I am guessing that we have over $3500 in our trip fund now. I will know numbers for sure on Monday when everything is open again. It is still not too late to contribute. Every dollar helps. Many of my friends have just given up a latte so they help. The money has literally come in dollar by dollar. But our God is a big God and He will supply the need. God is a good God. I give Him all the praise for this opportunity.
I am happy Christmas is over, so I can concentrate on what I need for the trip. Not that I don't like Christmas, but this year has been very difficult and being newly separated, and missing Becky made it a little more challenging. Airline regulations make traveling with medicine, insulin, needles, a pump, all very difficult. Of course I want to be as safe as the next person, so I don't really mind, but if you are sick and need your medications with you on the plane, you shouldn't have to fight quite so hard. On Monday I have to go visit 3 doctor's offices to request a copy of my medical records for the last 5 years and also a letter from the doctor stating what medications he/she prescribed and are of medical necessity. I then have to go back 48 hours later to pick up records and letters. Today I went to my pharmacy and requested all my refills and a list of medications from them. All my medications must fit into a regulation size zip lock bag and be see through for my carry on. Also because I wear a pump that can not go through the x-ray machine, my bags and myself will be flagged at each stop. Oh such fun..I would really hate to work in an airport. People are already tired and grumpy when traveling, but then when they flag you it really does delay things. I am definately one of those people that have to be at the airport 2 hours early because I get held up in security everytime. Last time I flew to Seattle, I had to undo my belt. It was so embarrassing. Oh well, I don't want to be on a plane with a bomb or hijackers either. So I will be patient and do my part of keeping America safe.
Today was a sick day. I was in bed till 1pm. I got to bed fairly late last night and then had such a headache I could not move this morning. When I finally did get moving it was after 3pm. I took a very hot bath and that helped my head quite a bit and then my 3 year old and I were going to head to Fred Meyer. I needed batteries for my insulin pump and a pair of slippers. We finally got into the car and no battery..dead as a door nail. It was so cold outside too. My friend had to come and get me and we had a good time shopping together. Both of us had gift cards and I got a great pair of slippers with hard soles for $8.50, I also got all my regulation size travel containers, some groceries, and a book to read on the plane. Headache is just now gone. I am back in bed and ready for tomorrow to come. Last time I looked it was 65 degrees in Scottsdale..that is a lot warmer then here.
Hope you all had an enjoyable Christmas Holiday.
Wow, can't believe I leave in 6 days for Scottsdale, AZ. The final countdown has begun for me and it couldn't be at a better time. In the last week, I have been sick twice with terrible stomach pains and all kinds of sickness. After talking to my family today, I am guessing that we have over $3500 in our trip fund now. I will know numbers for sure on Monday when everything is open again. It is still not too late to contribute. Every dollar helps. Many of my friends have just given up a latte so they help. The money has literally come in dollar by dollar. But our God is a big God and He will supply the need. God is a good God. I give Him all the praise for this opportunity.
I am happy Christmas is over, so I can concentrate on what I need for the trip. Not that I don't like Christmas, but this year has been very difficult and being newly separated, and missing Becky made it a little more challenging. Airline regulations make traveling with medicine, insulin, needles, a pump, all very difficult. Of course I want to be as safe as the next person, so I don't really mind, but if you are sick and need your medications with you on the plane, you shouldn't have to fight quite so hard. On Monday I have to go visit 3 doctor's offices to request a copy of my medical records for the last 5 years and also a letter from the doctor stating what medications he/she prescribed and are of medical necessity. I then have to go back 48 hours later to pick up records and letters. Today I went to my pharmacy and requested all my refills and a list of medications from them. All my medications must fit into a regulation size zip lock bag and be see through for my carry on. Also because I wear a pump that can not go through the x-ray machine, my bags and myself will be flagged at each stop. Oh such fun..I would really hate to work in an airport. People are already tired and grumpy when traveling, but then when they flag you it really does delay things. I am definately one of those people that have to be at the airport 2 hours early because I get held up in security everytime. Last time I flew to Seattle, I had to undo my belt. It was so embarrassing. Oh well, I don't want to be on a plane with a bomb or hijackers either. So I will be patient and do my part of keeping America safe.
Today was a sick day. I was in bed till 1pm. I got to bed fairly late last night and then had such a headache I could not move this morning. When I finally did get moving it was after 3pm. I took a very hot bath and that helped my head quite a bit and then my 3 year old and I were going to head to Fred Meyer. I needed batteries for my insulin pump and a pair of slippers. We finally got into the car and no battery..dead as a door nail. It was so cold outside too. My friend had to come and get me and we had a good time shopping together. Both of us had gift cards and I got a great pair of slippers with hard soles for $8.50, I also got all my regulation size travel containers, some groceries, and a book to read on the plane. Headache is just now gone. I am back in bed and ready for tomorrow to come. Last time I looked it was 65 degrees in Scottsdale..that is a lot warmer then here.
Hope you all had an enjoyable Christmas Holiday.
Thursday, December 24, 2009
Merry Christmas
Hello friends,
Just wanted to send out Christmas blessings and I hope love, peace, and joy for your new year. This Christmas is a bit bittersweet for me, as I am filled with hope for my Mayo Clinic Journey that begins next week and sad as this is the first Christmas for my mom and I to face some tough situations in our lives. I am so glad that we are able to be together to support and strengthen each other through this day. My husband and I officially separated as he finally did find a place of his own and will be moving from our home of three years this weekend. I moved last month and am settled into a wonderful apartment that is such a blessing to live in. But it didn't feel real until he actually got his own place with his own lease also. Now I know that this is really happening and have to just go forward and try not to focus on the negative. He is spending Christmas day here in my place, which will benefit our son greatly, while there is still pain that we both feel I know that we can all be adults and get through this tough time together. This is not any easier on him I am sure. It was his decision and I am sure it was a very hard one for him to make, but I respect that and truthfully our marriage has been troubled for a long time. I just kept hoping for change..and so did he, but neither of us were really willing to change and that brought division and separation into our marriage. The good news is that we don't fight, the kids come first, and he is a good friend. He is a good father and helps with money whenever I ask. I am blessed by that, as lot of wives going through separation and ultimately divorce are not that lucky. I will not go into reasons why we have come to the conclusion that separation is best at this time, as it affects more than me, but our counselor were in agreement with it and the time has just come. Maybe we will just stay separated for a year and then re-evaluate, or maybe when I come back from the Mayo Clinic we will just know and have direction. All I know is that with all these medications in me I am in no shape to make any life changing decisions at this time. Also I can not force anyone else to change or make life changing decisions, So I will patiently wait on the Lord. God always wants what is best for us and I just have to trust and believe that. Isn't that what faith is? Merry Christmas to you all. I hope as more people find this blog it will carry a message of hope and of healing. I am going to share myself and be real like I never have before. This is scary to me, but transparency is what God wants and I want to be a light for others and help people that struggle with having a chronic illness or many chronic illnesses and still walk in faith toward God. The bible says we all have a measure of faith in us, we just need to find it. Christmas is about a virgin that believed the Angel Gabriel with his tidings of great joy...Christmas is about shepherds out keeping their sheep and seeing a multitude of angels light up the sky singing God's glory...Christmas is about giving ...as God gave us His son in the flesh...Merry Christmas to you. Thank you to all who have donated to the Becca Fund. We are still raising money, and God continues to provide. I am humbled by the outpouring of love from people I never expected to hear from and continue to see God working in the hearts of others. Praise God that He never gives up on us.
Merry Christmas, and God Bless you!
becca
Just wanted to send out Christmas blessings and I hope love, peace, and joy for your new year. This Christmas is a bit bittersweet for me, as I am filled with hope for my Mayo Clinic Journey that begins next week and sad as this is the first Christmas for my mom and I to face some tough situations in our lives. I am so glad that we are able to be together to support and strengthen each other through this day. My husband and I officially separated as he finally did find a place of his own and will be moving from our home of three years this weekend. I moved last month and am settled into a wonderful apartment that is such a blessing to live in. But it didn't feel real until he actually got his own place with his own lease also. Now I know that this is really happening and have to just go forward and try not to focus on the negative. He is spending Christmas day here in my place, which will benefit our son greatly, while there is still pain that we both feel I know that we can all be adults and get through this tough time together. This is not any easier on him I am sure. It was his decision and I am sure it was a very hard one for him to make, but I respect that and truthfully our marriage has been troubled for a long time. I just kept hoping for change..and so did he, but neither of us were really willing to change and that brought division and separation into our marriage. The good news is that we don't fight, the kids come first, and he is a good friend. He is a good father and helps with money whenever I ask. I am blessed by that, as lot of wives going through separation and ultimately divorce are not that lucky. I will not go into reasons why we have come to the conclusion that separation is best at this time, as it affects more than me, but our counselor were in agreement with it and the time has just come. Maybe we will just stay separated for a year and then re-evaluate, or maybe when I come back from the Mayo Clinic we will just know and have direction. All I know is that with all these medications in me I am in no shape to make any life changing decisions at this time. Also I can not force anyone else to change or make life changing decisions, So I will patiently wait on the Lord. God always wants what is best for us and I just have to trust and believe that. Isn't that what faith is? Merry Christmas to you all. I hope as more people find this blog it will carry a message of hope and of healing. I am going to share myself and be real like I never have before. This is scary to me, but transparency is what God wants and I want to be a light for others and help people that struggle with having a chronic illness or many chronic illnesses and still walk in faith toward God. The bible says we all have a measure of faith in us, we just need to find it. Christmas is about a virgin that believed the Angel Gabriel with his tidings of great joy...Christmas is about shepherds out keeping their sheep and seeing a multitude of angels light up the sky singing God's glory...Christmas is about giving ...as God gave us His son in the flesh...Merry Christmas to you. Thank you to all who have donated to the Becca Fund. We are still raising money, and God continues to provide. I am humbled by the outpouring of love from people I never expected to hear from and continue to see God working in the hearts of others. Praise God that He never gives up on us.
Merry Christmas, and God Bless you!
becca
Tuesday, December 22, 2009
December 22, 2009
Hi there,
I am happy to finally be writing my first blog. In the last couple of weeks my family and friends have been raising funds to get myself and my care giver to the Mayo Clinic in Scottsdale, AZ. I have medical insurance, but it does not pay for air fare, hotel rooms, or food expenses. We are staying at the Inn right on the Mayo Clinic campus and there is a shuttle that will take us to several different places. That will be a blessing as we will not need to rent a car.
We leave Friday, January 1st, 2010. What a great way to start a new year. Last time I checked it was 71 degrees in Phoenix and 18 degrees here. I have to go to my storage unit in order to pack because all my summer clothes are packed away..lol
So far we have raised a little over $2000 for the fund. The airfare was $550 for 2 round trip tickets and will charge a fee if we need to change dates for coming home. Three weeks at the hotel will cost $3000.00 but includes a hot breakfast each morning and an evening snack each night. Also our room is set up like a studio apartment with a kitchen, living area and then bed and bath. So we can buy groceries and have healthy food. The pictures of the clinic and hotel are incredible and I feel extremely blessed to be staying there. In the lobby there are "pod" areas where you can hook up your laptop, charge your phone, or just sit and have quiet time. I am really happy with this as I am not sure yet, what the doctors will be doing and if I will be allowed out of bed, or if I will even want out of bed, but at least my care giver will have soem breathing space. Only 10 days till we arrive in AZ. My first appointment is at 7am on Monday the 4th. We are leaving on Friday because the airfare was less money and also if it snows or weather is bad, we have some wiggle room for another flight. I am happy that we will have time to get settled in our hotel and perhaps even find a church/chapel on the campus that we can visit. My care giver is my best friend's mom. She is a wonderful woman of God and will take good care of me as I withdraw off some meds and get used to new ones.
I am a little sad for my kids at this time. My husband and I seperated in October and my little boy is really struggling to understand. The last thing I want to do is leave him for 2 to 3 weeks..but I know God has a plan and I will come home healthier and a better mom for it. Check back for updates..I will tall how daily how things are going and what my experiences are like. It will be fun to share this journey.
I am happy to finally be writing my first blog. In the last couple of weeks my family and friends have been raising funds to get myself and my care giver to the Mayo Clinic in Scottsdale, AZ. I have medical insurance, but it does not pay for air fare, hotel rooms, or food expenses. We are staying at the Inn right on the Mayo Clinic campus and there is a shuttle that will take us to several different places. That will be a blessing as we will not need to rent a car.
We leave Friday, January 1st, 2010. What a great way to start a new year. Last time I checked it was 71 degrees in Phoenix and 18 degrees here. I have to go to my storage unit in order to pack because all my summer clothes are packed away..lol
So far we have raised a little over $2000 for the fund. The airfare was $550 for 2 round trip tickets and will charge a fee if we need to change dates for coming home. Three weeks at the hotel will cost $3000.00 but includes a hot breakfast each morning and an evening snack each night. Also our room is set up like a studio apartment with a kitchen, living area and then bed and bath. So we can buy groceries and have healthy food. The pictures of the clinic and hotel are incredible and I feel extremely blessed to be staying there. In the lobby there are "pod" areas where you can hook up your laptop, charge your phone, or just sit and have quiet time. I am really happy with this as I am not sure yet, what the doctors will be doing and if I will be allowed out of bed, or if I will even want out of bed, but at least my care giver will have soem breathing space. Only 10 days till we arrive in AZ. My first appointment is at 7am on Monday the 4th. We are leaving on Friday because the airfare was less money and also if it snows or weather is bad, we have some wiggle room for another flight. I am happy that we will have time to get settled in our hotel and perhaps even find a church/chapel on the campus that we can visit. My care giver is my best friend's mom. She is a wonderful woman of God and will take good care of me as I withdraw off some meds and get used to new ones.
I am a little sad for my kids at this time. My husband and I seperated in October and my little boy is really struggling to understand. The last thing I want to do is leave him for 2 to 3 weeks..but I know God has a plan and I will come home healthier and a better mom for it. Check back for updates..I will tall how daily how things are going and what my experiences are like. It will be fun to share this journey.
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